Update on Kaitlyn

The official results from the oral glucose tolerance test (ogtt) came in today.  Her 2 hour number was well over 200 at 257.  That definitely shows that she is progressing toward type 1 diabetes.  They need to do a retest to confirm.  If the labs come back over 200 again, she will be officially diagnosed the day the labs come in.  They are willing to retest her as early as next week, the week after Christmas.

The good news is that her A1c is still 5.0, where under 6.0 is considered normal.  Andrew works really, really hard at his diabetes, and I've never even dreamed of a 5.0.  The A1c is like a 3 month average.  It says that her average blood sugar is 97.  So, she may not handle sugar on an empty stomach well, but she is handling typical meals rather well.

For that reason, I scheduled her retest on Martin Luther King, Jr. Day, January 16th.  It gives us a month.  It gives her a little time to recover from a small toe surgery & infection last month.  It lets us enjoy Christmas.  It lets us get settled into a new semester at school.  It gives her a little more time without a diagnosis.  They admitted she probably won't need insulin at first, and all we will need to do is watch her.  It extends the time she has as a newly diagnosed patient should we choose to participate in a research trial.

Speaking of research trials, she is eligible for the T1dal trial.  It uses the drug, anevive, or alefacept.  I'll have to blog more on that later.  I only found out about it today.  It is the only trial for new onset diabetes right now.  So far, I'm not excited by it.  Most trials only accept patients within the first 90 days of diagnosis.  Once she is diagnosed, her time clock starts ticking.  However, come January 16th, I fear there will be no turning back.