My Brain Hurts!

With Kaitlyn's impending diagnosis, I'm doing lots of research into clinical trials. Most are only open to new diagnoses. There is nothing for Andrew now. There are several promising trials - Teplizumab & Diamyd are two possibles. However, my brain hurts from trying to understand their benefits along with side effects like transient cytokine release symdrome, & lymphopenia. Please pray for wisdom and open and closed doors as we research for Kaitlyn. We were offered a trial (probably Teplizumab) when Andrew was diagnosed, but it was at Yale. With everything else we were trying to absorb, messing with his immune system & spending two weeks in the hospital in Yale was more than we could stomach. Now, I have heard of the benefits of the drug (C-peptide/insulin production remaining at 5 years!) and it's available at UAB. Still 2 weeks possibly all hospitalized. If we do that, it would be nice to get it done before school starts. However, we have to wait two weeks because it has to be 8 weeks since her last immunization & she just got a booster for middle school six weeks ago. I'm done for today, but more research tomorrow!