So, I didn't really take the mental vacation that I said I would in the last post. I contacted the doctors in Birmingham & got more information from them. I stayed up late at night researching immunology so I could understand medical reports. I got excited about Dr. Faustman's research, learned about HLA.... Right now, though, I'm not ready to take the risk involved. Maybe Diamyd. But not Teplizumab. I'm glad I had the time to do the research & time to calm down enough to realize that maybe I should say no. Anyway, I've come to a peaceful place where internet research no longer calls to me. Maybe it will put it all in perspective if/when she gets a diagnosis. It will be much simpler to deal with diabetes & not the clinical trials, two weeks of hospitalization, illness, etc.
Thanks also for your prayers for Andrew! His nighttime basals are finally working! He has been between 80 & 150s all night all week! I have my 5 nights in a row, so maybe we can start sleeping through the night. What were the rules? Check him only when he has been swimming, had ball practice, late site change... A late site change today means I check him tonight, but we may get some sleep between now & when school & football starts. I wonder what it feels like to sleep through the night???
it's hard for moms not to continue to search for answers when it's their child. So glad you are feeling at peace.
ReplyDeletepraying for sleeping through the night many nights in a row